Access To…What, Exactly??Posted: March 6, 2014
On Sunday it’ll be one month since my PIP form arrived at the DWP. I thought I’d celebrate by calling them on Monday to see if they actually received it (as I’ve not had the “You didn’t send your form back” letter but I also haven’t had the “we’ve got your form and we’re going to put it in a large pile for the next six months” letter). So we’ll see how that pans out. Prediction: it’ll be painful.
Up until last week I’d pretty much only been thinking up to my rheumatology appointment, like it was going to offer me all the secrets of being able to function again. In the end, the appointment was a little underwhelming and now I have to think about what to do next. My long-term goal, however, is that I want to go back to work. Now because I’m not *completely* stupid, I’ve realised that my ability to work may not be as it once was. I love my job, however, and I’m willing to do whatever I can to try to get back to it.
One option to help me out in this is the Access To Work scheme. Once a very effective way to give disabled people the support and equipment to help them have a career, now a long list of things you’re no longer allowed to have. Good luck finding a way you can be supported by the scheme if you need a specialist desk, chair, computer equipment or office equipment because they now no longer supply these. So, in a perfect world, if I wanted to go back to work tomorrow, what would I need?
- Someone to drive me to work and back. I live an hour’s drive each way from where I work. In order for me to still be able to work once I get there, I’d need someone to do the driving for me. Also, if I wanted to be pain-free while working I’d have to take painkillers, and I’m not fond of driving on painkillers.
- A way to get around while I’m at work. Maybe not completely essential – I could run my youth work sessions sitting in a chair all evening, if I really had to – but it’s difficult to take charge of a group of young people when you can’t move around.
- Someone to help with the lifting and carrying. I’m self-employed,my office is my spare room. I’m a youth worker, I use a lot of resources. When I’m working, the back of my car is normally full of them. As I’m currently not able to lift anything heavier than a small cat, some help carrying and moving boxes of resources would be needed.
And that’s pretty much it. Not a lot, but if I had that I could go back to work tomorrow. Literally. However. From reading accounts such as BendyGirl’s attempts to access the ATW scheme, I know full well that I’d probably have a full recovery from my chronic condition before anything like these support means would get put into place. I could get a job closer to where I live, and I’m in the process of looking into how I might be able to do that. But the project I currently work on I’ve worked on since 2007, when I started it. It’s about to go through a couple of years of MAJOR change that I and the community and the young people have put years worth of work into. Would you want to pull out of your job at such a crucial time?
No. Me neither.
I am *desperate* to go back to work. I have other projects and things up my sleeve that I can do at home while working really isn’t an option but I want to go back to work. The thing is, I don’t know if I’ll actually be able to. And it’s not because I can’t work – I can work! I have been working and I want to work again! But accessing my job is a lot more difficult now than it used to be. I hope I get some support, somehow. But I’m not holding my breath.