I have to go to the Job Centre on Friday. In fact, I have to go to the Job Centre every Friday because I’m now on JSA.
My mandatory reconsideration for my ESA claim was denied, which I already knew it was going to be. I could appeal, but I got 6 points out of 15 so it seems a bit pointless. Normally I’d be the first one going “no, you must appeal, try everything you can!” but to be honest I’m a bit knackered by the whole thing and after not being successful at my PIP appeal last year I’m not massively inclined to go through another one. So, hurrah, the system works! Y’know, the one where they keep saying no until you’re too tired and generally exhausted to try getting them to change their minds.
So I’m on JSA. I have a Claimant Commitment and I’m on Universal Jobmatch and I’m just waiting for the ideal job to come along…the one where I can be paid a full working week’s wages for three hours work conducted mostly while sleeping. That job.
In a fantastic twist of irony I’m actually better off now than I was on the assessment rate of ESA – assessment rate ESA is the same as the base rate of JSA – £73.10 a week – but on JSA I get “extra money because you’re disabled” (that’s literally what the extra is called on my JSA letter) bringing my weekly JSA up to £105.35 a week. Today my fatigue and pain were enough that I couldn’t walk from my sofa to my kitchen (for context: I could fall off the sofa and almost touch the kitchen they’re that close but I’ve just moved house and have no carpets so that would be a risky move). But of course on JSA you have to job search and “be available for work” which I guess I am if the work involves sitting on the sofa in my PJs knitting socks.*
*I would like to state for the record that I will happily take any job that involves sitting on my sofa in my PJs knitting socks
So I guess I want to wish the Job Centre good luck in finding me a job, I suppose. My tactic currently is to turn up weekly and say “nope, didn’t find anything I can physically do this week, sorry” for the foreseeable future and see what happens.
How do you tell the job centre that the issue with finding work isn’t the “finding” part, but the “work” part? Finding a job isn’t the issue. There are jobs out there in my sector – not as many as there were but there are some. Believe me, in fleeting moments I have looked at different job roles and thought “if I wasn’t ill I’d be so good at that job”. I could have a job, a managerial post, with a salary. If I did that I’d be able to rent a flat privately, I wouldn’t be sitting on the council waiting list because the Local Housing Allowance won’t cover a private rented flat and I’m pretty sure life would be a lot sunnier.
Funnily enough, I’m not in this non-working position because I don’t want to work. Far from it. I’m here because I’m ill.
I’m here because I get about two hours functional working brain time a day, on a good day. I’m here because I currently can’t cook a meal, can’t clean my own flat (vacuuming and washing up both involving a level of standing and arm-usage I’m really not able to achieve right now), am fatigued to a level where I sometimes have to have meal replacement shakes for dinner and a bus ride to the local job centre and back leaves me in bed for the rest of the day. And sometimes the next one. I don’t do this because it’s an easier life. An easier life would be working a good full-time job and being able to take care of myself.
Yesterday I discovered I hadn’t been successful in my claim for ESA. Out of a required fifteen points, I had scored a measly six. For mobility. The pain, the fatigue, the general crapness of my ability to function wasn’t so crap that I would be deemed unable to work. I’m going for a mandatory reconsideration of course – especially as the decision maker on the phone told me “you put that your condition is variable, which means sometimes it doesn’t affect you” and we all know that’s not what variable means, for me variable means “sometimes I can put on clothes and leave the house!” – but in the meantime I’ve been transferred over to JSA and I have to attend a “work-focused interview” on Monday morning at the Job Centre.
Y’know, the one that puts me in bed for a day, that one.
I’m already exhausted.
And just when I was all excited that I would have to fill in any more forms.
After just under a year of trying, failing, trying again and finally succeeding to get PIP, welcome to the sequel: ESA. Yup. My circumstances have changed, and now I have to make my own ESA claim. It’s like deja vu all over again. I’ve been sent a “Capability for work questionnaire” with the famous “Can you pick up a £1 coin” question, I have my sick note from the doctor and I’ll have not only a “Capability for work assessment” but also a “compliance interview” (because I’m going from being on someone else’s ESA claim to going onto one of my own and apparently I have to Do That The Right Way).
Are you ready for months of fun exciting blog entries about my third trip through the wilderness with the Department for Work and Pensions? I know I am!*
*At this point I’d like to personally thank the Department for Work and Pensions for giving me months, nay YEARS of material to blog about. I couldn’t have done it without you.
So, my PIP appeal was not successful. The panel didn’t award me enough points under the descriptors for me to qualify. So no PIP for me. I can reapply, and I will, but the back-payment of PIP between last September and now – which I would’ve had if my appeal had been successful – is gone.
I was going to write about the tribunal experience, about going into a courtroom and being questioned and about how this isn’t an exercise in helping someone, this is a tribunal hearing where you are expected to explain yourself. About how you have to give evidence in the “right” way, and not annoy the judge which suggests that they may be basing their decision on their opinion of you, rather than on your medical evidence.It shouldn’t matter how much I piss the judge off if the medical evidence stacks up in my favour. But thousands of people have done this before and this is not something out of the ordinary. For many sick and disabled people, this is ordinary. Going to court to try and get the basic level of help to live your life is now “ordinary”. Unremarkable. Expected. Acceptable.
Personal Independence Payment is supposed to provide you with exactly what it says – independence. For the year I had PIP I used it for yoga classes, bus travel, car parking, heat pads and support pillows and a whole load of other stuff. Having this stuff meant I could look after bits of my health – travelling, sleeping well, moving around to a level I could manage – that meant I was able to do other things I wanted to achieve, like finishing my MA. Unfortunately, the things my PIP allowed me to do turned out to be the very things that led to it then being taken away from me again. The argument “when I have PIP I’m independent so I need to continue having it in order to maintain that” wasn’t enough. Which leads me to believe this isn’t about “independence” at all.
As for me, I’m alright. On the day of the tribunal I was upset but I went through the five stages of grief pretty quickly and had got to acceptance by the next day. I’ll reapply, I have other things to do, this isn’t the be-all and end-all of everything. However it does mean you’ll now have to put up with me going through the PIP process *again*…but you can blame the tribunal service for that one!
My PIP tribunal is in a week and I am exhausted. I am now also very aware of the cost that goes into a tribunal, both monetary and health-wise. I am one person, with one PIP claim, and it’s taking an army of people. And an army of people come with an army of costs.
I received the “bundle”, that is all the documents the DWP hold about you as part of your PIP claim, back in January. My particular bundle consisted of 188 photocopied pages. Times that by two as a copy of all that is also sent to whoever’s representing you at tribunal, if anyone is. And then the DWP has to mail both of these reams of paper.
I am immensely lucky to have a local law centre that is very good at PIP tribunals. Everything I receive from them, I receive for free. An initial consultation, time for my representative to read through my bundle of papers, a longer interview, more time for him to write up witness statements and finally their time spent at my tribunal representing me. Legal time is expensive time, and someone somewhere has to foot the bill.
And the tribunal itself. A judge, and two representatives have to spend their time conducting my tribunal. The court has to be booked and paid for. Travel costs, more printing costs, any other of a myriad of administration tasks that have to be done. The filing of court papers. The sending out of the letters instructing when the tribunal will be. This is all expensive stuff. Someone has to pay for it.
And of course I’m hardly the only person in the country who has gone to tribunal for their PIP claim, very very far from it. According to Benefits and Work the number of PIP appeals in the first quarter was 14,751. This is costing the country a fortune.
But the other huge cost of a PIP tribunal is that it makes people who are already sick get sicker. I’m so, so tired of doing this and I know how to do this. I know how this system works and I know how to fill in forms and how to say everything the way it needs to be said. I have help and representation. And I’m tired. I can say categorically that the PIP appeal process is designed to be as difficult and as exhausting as possible, in order to make people who already struggle just give up completely. It’s designed to be a big, impassable mountain.
My tribunal’s next week. I’ll keep you posted.
So I’m not one to boast (honest!) but I like to think of myself as a reasonably intelligent person. I have a Masters degree. I’ve worked in housing and youth work and at various points I’ve worked in a professional capacity with benefits offices, social services and housing organisations. I’ve written benefits forms for almost every benefit there is at one point or another, and I feel pretty confident that I know how the benefits system works.
And I’d like you to bear the above in mind when I say, trying to organise my PIP appeal is not easy.
My “bundle” arrived in the post a few days ago. This is the pile of paperwork the DWP send you when you say you’re going to a tribunal to challenge their decision. Because the tribunal is handled by the courts, the DWP has to give up any documentation they have for my PIP application so we can look over it and make my case for qualifying for PIP. Firstly let’s cast aside the fact that 99.9% of the 183 pages I was sent I already have. When they say you are sent a bundle that’s literally what you get. A wodge of A4 papers. Consisting of any application forms you’ve done, any supporting documentation you’ve sent, any assessments you’ve had, anything and everything they’ve used to assess your PIP claim.
And that’s it. You’re sent the info and that’s all you have. The rest is up to you.
Luckily, I already know that there are places that have a very high rate of success if you go to them for support with your tribunal. I know that if you have someone representing you at the tribunal you’re more likely to succeed. I know that I could use various local resources – Citizen’s Advice, the local Law Centre etc. – to help me put forward a good case at tribunal and so increase the likelihood of it being successful. I have the knowledge and the ability to be proactive and to go to the right places to get support in doing this. But even with all my background working in this area, I’m still finding it confusing.
I wonder how many claimants who should be receiving PIP stopped at the first refusal letter, because they didn’t know what mandatory reconsideration was and they didn’t have the support to apply for it. I wonder how many found the court form to request a tribunal far too confusing and just couldn’t do it. I wonder how many people on hearing the word “tribunal” were terrified at the thought of having to go to a court and argue their case. And I wonder how many people upon receiving 180-odd pages of meaningless paperwork just felt they couldn’t deal with the stress of it all. I can see why.
I almost feel lucky to be in the position I’m in because I know how to jump through the hoops. The system is set up to fail everyone who isn’t able to do that. This process is designed to confuse. It’s designed to be impenetrable to anyone who doesn’t already have a complex understanding of the benefits system. It’s designed to target those who are most vulnerable, who are struggling the hardest and who need the most help. It’s designed to make them give up.
Hello! Did I just send you this link? Are you trying to have an
argument a “discussion of our opinions” on Twitter?
Then this post is for you, my friends!
I don’t have
arguments “discussions of opinions” on Twitter. This is why:
- You can’t make a point in 140 characters. So I’m not about to try.
- You probably have an inaccurate view of the world, such as “all poor people are scroungers” or “disabled people should just try harder” or “men have it hard too!” or similar.
- I do not have the time or energy to explain any of the following to you over Twitter:
- Feminist theory
- The social housing allocation system
- The welfare benefit system
- Various models of disability.
- It is not my job to educate you on any of the above. If you want to know about it you can go out and find out about it, just like I had to.* In fact, there’s some info about that stuff here on this very blog!
- In order to explain why your view is incorrect would require way more than 140 characters and requires you do stuff like read things. Which you either a) can’t be bothered to do or b) think you’re correct about anyway.
- You feel your opinion overrides my real life experience and knowledge. It doesn’t, it never will. I know you find that hard to accept, but you’ll get there.
- But, I’m 99.9% sure that you have no interest in doing any of the above because all you want to do is tell me how poor people are scroungers/women are all man-hating feminazis/welfare benefits are ruining this country or similar. In which case I’ll probably just laugh at you for a while until I get bored and go off to find something more entertaining to do.
*this does not include any of the following sources: The Daily Mail, The Sun, The Express, http://www.poorpeoplearescroungers.com, your mate who knows this bloke whose next-door neighbour got a house for free and she gets £30,000 a year and doesn’t work, Katie Hopkins, Jeremy Kyle