So I’m not one to boast (honest!) but I like to think of myself as a reasonably intelligent person. I have a Masters degree. I’ve worked in housing and youth work and at various points I’ve worked in a professional capacity with benefits offices, social services and housing organisations. I’ve written benefits forms for almost every benefit there is at one point or another, and I feel pretty confident that I know how the benefits system works.
And I’d like you to bear the above in mind when I say, trying to organise my PIP appeal is not easy.
My “bundle” arrived in the post a few days ago. This is the pile of paperwork the DWP send you when you say you’re going to a tribunal to challenge their decision. Because the tribunal is handled by the courts, the DWP has to give up any documentation they have for my PIP application so we can look over it and make my case for qualifying for PIP. Firstly let’s cast aside the fact that 99.9% of the 183 pages I was sent I already have. When they say you are sent a bundle that’s literally what you get. A wodge of A4 papers. Consisting of any application forms you’ve done, any supporting documentation you’ve sent, any assessments you’ve had, anything and everything they’ve used to assess your PIP claim.
And that’s it. You’re sent the info and that’s all you have. The rest is up to you.
Luckily, I already know that there are places that have a very high rate of success if you go to them for support with your tribunal. I know that if you have someone representing you at the tribunal you’re more likely to succeed. I know that I could use various local resources – Citizen’s Advice, the local Law Centre etc. – to help me put forward a good case at tribunal and so increase the likelihood of it being successful. I have the knowledge and the ability to be proactive and to go to the right places to get support in doing this. But even with all my background working in this area, I’m still finding it confusing.
I wonder how many claimants who should be receiving PIP stopped at the first refusal letter, because they didn’t know what mandatory reconsideration was and they didn’t have the support to apply for it. I wonder how many found the court form to request a tribunal far too confusing and just couldn’t do it. I wonder how many people on hearing the word “tribunal” were terrified at the thought of having to go to a court and argue their case. And I wonder how many people upon receiving 180-odd pages of meaningless paperwork just felt they couldn’t deal with the stress of it all. I can see why.
I almost feel lucky to be in the position I’m in because I know how to jump through the hoops. The system is set up to fail everyone who isn’t able to do that. This process is designed to confuse. It’s designed to be impenetrable to anyone who doesn’t already have a complex understanding of the benefits system. It’s designed to target those who are most vulnerable, who are struggling the hardest and who need the most help. It’s designed to make them give up.
Hello! Did I just send you this link? Are you trying to have an
argument a “discussion of our opinions” on Twitter?
Then this post is for you, my friends!
I don’t have
arguments “discussions of opinions” on Twitter. This is why:
- You can’t make a point in 140 characters. So I’m not about to try.
- You probably have an inaccurate view of the world, such as “all poor people are scroungers” or “disabled people should just try harder” or “men have it hard too!” or similar.
- I do not have the time or energy to explain any of the following to you over Twitter:
- Feminist theory
- The social housing allocation system
- The welfare benefit system
- Various models of disability.
- It is not my job to educate you on any of the above. If you want to know about it you can go out and find out about it, just like I had to.* In fact, there’s some info about that stuff here on this very blog!
- In order to explain why your view is incorrect would require way more than 140 characters and requires you do stuff like read things. Which you either a) can’t be bothered to do or b) think you’re correct about anyway.
- You feel your opinion overrides my real life experience and knowledge. It doesn’t, it never will. I know you find that hard to accept, but you’ll get there.
- But, I’m 99.9% sure that you have no interest in doing any of the above because all you want to do is tell me how poor people are scroungers/women are all man-hating feminazis/welfare benefits are ruining this country or similar. In which case I’ll probably just laugh at you for a while until I get bored and go off to find something more entertaining to do.
*this does not include any of the following sources: The Daily Mail, The Sun, The Express, http://www.poorpeoplearescroungers.com, your mate who knows this bloke whose next-door neighbour got a house for free and she gets £30,000 a year and doesn’t work, Katie Hopkins, Jeremy Kyle
Anyone who’s been semi-aware of anything that’s happened in the last 35 years or so will know that Tories don’t like Council Housing. They are the party of the “striver”, and so hate the idea that anyone’s getting anything they haven’t grafted for. The great oracle in the sky to aim for is the blessed state of Home Ownership. Thatcher in the 80’s made this available to your average bod on the street by letting them buy their council property at a fraction of their value, and from then on the holy grail has been to Own Your Own Home.
This week the government announced that lifetime tenancies for council properties would be stopped, and five year tenancies brought in. On first look, this is a difficult policy to manage. There are many people living in council properties who are earning a decent wage and could live in the private sector but who are taking advantage of the reduced rent of a local authority property. And there are plenty of people needing housing who could take up that now-vacated property. But in actual fact I don’t think the thinking behind this policy is as nuanced as that. I think it comes down to a hard and fast line the Tory party are pushing: you don’t want to live in a council property.
When council properties were starting to be built en-masse after the war, they were seen as replacement communities for the slums that had been either bombed or torn down. Everyone knew each other, neighbours were neighbourly and took care of one another. Tory policy has been the reason council estates have turned into places people don’t want to be (I’ll put some books at the end that I think are excellent reading on the specifics of this as I want to mainly focus on the stuff from this week). By creating what is in effect a five year rolling tenancy, Tories have made sure people will never feel totally settled in their homes. Why redecorate if you’re going to be told to move in a few years? Why get attached to a place if you might be told you have to leave it?
And the problem with not becoming attached to a place is that you lose a sense of community. After Right to Buy, there were a lot of council properties that were taken up by buy-to-let landlords once the original buyers sold up. Those in less salubrious areas often ended up being rented back to the council (who would have to pay an exorbitant rent to the private landlord) and used as temporary accommodation – those coming out of rehab, homeless people, people on probation. You end up with a transient population and where there’s a high turnover of tenancies there’s a low feeling of community (for a more in-depth look at this issue I highly recommend the chapter “Damage” from Nick Davies’ book Dark Heart – see end of post). A transient population is fractured. And the introduction of five year tenancies will make it even more so. This will cause a huge amount of damage to areas of social housing which more often than not are also areas of high deprivation and child poverty.
The Tories are pushing even further their housing hierarchy. At the top, home ownership. Underneath, expensive private renting. And at the lower level? Council housing, where only the poorest live. If you live in council housing, then, you must be poor. and we all know the messages the Tories like to push out about the feckless poor. Council housing is now a “last resort”. Which is going to further effect estates and communities. It’s another attack from the government to tell the poorest people “you do not matter”.
Recommended books on the history of council housing:
Estates: An Intimate History – Lynsey Hanley
The People: The rise and fall of the working class – Selina Todd
Getting By: Estates, Class and Culture in Austerity Britain – Lisa McKenzie
Dark Heart: The shocking truth about hidden Britain – Nick Davies
This morning I woke up, lay in bed for a little while on my heat pad in an attempt to warm up, then got out of bed and went to make breakfast. I ate my porridge in front of my computer as I often do, and took to Twitter complaining that as it was raining I had lots of pain (also as I often do!) I ate my breakfast and took my medication, which included Naproxen and Tramadol. I complained on Twitter a little more and empathised with others also experiencing a chronic pain flare up in this rainy weather.
My best awake time is in the morning. So I began doing some work as I knew after lunch my brain would turn to mush and I’d probably have to go to bed for a while. My husband went to empty the postbox and lo and behold I had a brown envelope.
My PIP reconsideration hasn’t been successful, I’m going to have to go to appeal.
I don’t even have the energy to feel massively angry about it. I’m just tired of it. More paper, more assessments, more trying to prove that I am actually ill and I don’t sit around for most of the day doing very little because it’s fun (it’s not fun). What can we do other than go “righto then” and get on with it. Anything else requires too much energy and I don’t have much of that right now.
So. Righto then. On we go.
On September 21st 2015 I had a letter telling me my Personal Independence Payments had been stopped after my re-assessment. On 12th October, I put in a written request for mandatory reconsideration of my claim.
I called the DWP last week, a month after I’d sent the letter. They found it on their system, and the person I spoke to on the phone told me they’d basically forgotten about it. It had been scanned and entered, and then left.
Today I called again. The decision still hasn’t been made. This time I was told it could take up to nine weeks for a decision. Which is halfway through December. Just shy of three months after my PIP was stopped.
In this time, surprisingly, I have not magically become better. I have not adapted to life without PIP because, funnily enough, I kinda need it. My extra financial requirements have not disappeared. But now I don’t have the cash to meet them.
My PIP paid for my weekly gentle yoga classes that helped me move and got me out of the house. It paid for a bus, it paid for me to park the car. It paid for me to use the local Shopmobility services when I went out. As a result of me losing my PIP our ESA payments also went down. This means I now cannot afford the yoga class, or transport, or much of anything really for the moment. Losing my PIP – albeit only temporarily, I hope – has meant I’ve lost a lot of my independence. I cannot afford to get out the house. I cannot afford to go to places and meet people. This is how people become isolated – it takes sick and disabled people more energy than most to get out the house in the first place. If they’re constantly worrying about if they can afford to, that’s not going to help.
I’ll be alright – I know how to fight this and if it goes further and I have to appeal, well, I can do that. But it’s not fun, and it’s not easy, and I’m ill and I’m tired. How am I going to make myself “work ready” if I have to spend all my very limited energy fighting for the basic stuff I need to be able to live my life? Removing essential money from sick and disabled people doesn’t make them more likely to succeed, it won’t make them more motivated to go out and work. In fact, it is doing just the opposite. We’re all very tired of fighting.
It’s a well-known piece of trivia that Ian Duncan Smith does not like disabled people. He actively puts forward policies that ruin lives – the Bedroom Tax, the “fit for work” tests to name but a couple. However he’s now decided to come out and be completely truthful about how he feels about sick and disabled people.
He feels they deserve to live in poverty.
Disabled people should have to work their way out poverty and not simply be taken out of it by state financial assistance, Iain Duncan Smith has said.
The Work and Pensions Secretary said it was not the role of government to pay the disabled enough to stop them being poor and that the correct way to escape poverty was by working.
This is a HUGE attack on disabled people. This is the Work and Pensions Secretary saying “you deserve this”. Saying “you are lesser than everyone else because you cannot work”.
“We won’t lift you out of poverty by simply transferring taxpayers’ money to you. With our help, you’ll work your way out of poverty.”
This is IDS creating a “them and us” situation. “We” are the taxpayers, “we” are the hard workers, “we” are worthwhile, productive people. “You” live off our dime, and “you” are getting handouts from our pockets. “You” need to work harder, because the reason you’re in the situation you are is because of your own personal failing.
Showing an enormous ignorance about disability, IDS is suggesting that disabled people don’t work because they are not encouraged to, because they are not inspired to, because “…when the system makes doctors ask a simplistic question: are you too sick to work at all? If the answer is yes, they’re signed off work – perhaps for ever.”
(IDS has clearly never tried to sign off sick…)
These statements are ignorant at best and dangerously damaging at worse. He the person who is in charge of ensuring disabled people are able to live by providing enough for us to do so, he is the one holding the purse strings. Disabled people who ARE able to work need so much more help and support – they need MORE money. And those who cannot? Should not live in poverty just because they are in a situation that they have absolutely no control over.
Last time I wrote about having my Personal Independence Payment assessment I said it felt like an exam I had to pass. As it turns out, this time I seem to have failed.
Yep, after doing my renewal application for my PIP, I was declined. I was half expecting this anyway but it still came as a shock. So now comes the mandatory reconsideration period and the appeals process. I’ve also requested a copy of my assessment to see if it’s as comedic as the last one was.
As an ill person, the expectations the DWP have of me are a bit confusing. I’m told that in order to be a productive member of society I have to work, that working is the best option for everyone and that their aim is to get everyone working. Yet, as soon as I try and be productive and proactive, I’m told I’m not ill enough to be receiving any help. Which means you cannot win. You cannot be productive while also being ill as the DWP don’t have a box for that. You can’t be a professional, an educated person because if you’re able to be educated and have a profession then you’re clearly not ill. The truth, as it always is, is far, far more complicated than that.
Me doing an MA does not means I don’t still have chronic pain. The fact I can write a blog entry doesn’t mean I won’t have to go to sleep for the afternoon due to chronic fatigue. Reading a book doesn’t mean I don’t need my pain medication. You’re told to be productive yet that means you’re not ill. If you’re ill you’re told you have to be productive.